WANT TO KNOW MORE ABOUT SPASMODIC TORTICOLLIS/CERVICAL DYSTONIA? The NSTA Symposium is Back! It is with a grateful thank you to the generous donations from Diane Truong, the late emeritus board member Bob Farmer, and from our sponsors Allergan Inc., Ipsen, MedTronics and US WorldMeds LLC, that we are proud to host our first symposium […]
37-year old patient with cervical dystonia Original story published on https://amadys.fr/temoignage/temoignage-de-m-adherent-dystonie-cervicale-se-reeduquer-apprendre-a-bien-vivre-maladie/ Having worked for several years as both a tour guide and a teacher in Paris, while pursuing my PhD in art history, I was diagnosed last year at the age of 36 with cervical dystonia. Receiving this diagnosis – which came, fortunately enough, only […]
Botulinum toxin is a widely used treatment for cervical dystonia, but many patients find that it wears off before they can get another shot and some have problems with the side effects. Is there a better answer? Think about volunteering for a research study and help to find out. A new investigational study drug, DAXI […]
The 4th International Congress on Treatment of Dystonia 2019 covers topics such as: Teatment of Dystonia Dystonia Deep brain Stimulation Dystonias are amongst the most common movement disorders. Botulinum toxin and deep brain stimulation have revolutionized their therapy. However, there are still considerable unmet therapeutic needs. This was the reason to organise an International Congress […]
Is your cervical dystonia medication wearing off too soon, with the pain returning? You’re not alone. A Phase 3 global research study called ASPEN, sponsored by Revance, needs people aged 18 to 80 who have been diagnosed with isolated cervical dystonia and who haven’t had a botulinum toxin injection within the previous 14 weeks. The […]
The 2018 fall issue of the ST Quarterly magazine will be mailed out soon. We have some interesting articles including need-to-know information on what is involved when you participate in a drug study. The following is the article that contains this information that is in the upcoming fall issue. We hope that you find this […]
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On Saturday, June 10th, the Parkinson’s and Movement Disorder Foundation (PMDF) and the NSTA hosted the seventh Zent-A-Thon 5K Walk/Run fundraiser at Mile Square Park. Despite the muggy weather and short shower early in the morning, we had a great turnout. Over 125 people attended the Zent-A-Thon, making this our largest attendance to date! A […]
On Saturday, May 19, 2018, the NSTA is hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California together with the Parkinson’s and Movement Disorder Foundation(PMDF) . Proceeds will help the NSTA in providing information and support to people spasmodic torticollis/cervical dystonia and the PMDF raise funds to support research. If you […]
Loma Linda University is hosting the on Friday, March 23 from 8:45am – 2:30pm. This will take place at: Wong Kerlee Conference Center 11175 Campus Street Loma Linda, CA 92350 The event is free for patients and caregivers. Breakfast and lunch is included. To register please call 909-558-5929
The National Spasmodic Torticollis Association (NSTA) and Parkinson’s and Movement Disorder Foundation (PMDF) is hosting a fundraiser for Parkinson’s and Movement Disorders (which includes dystonia). On Saturday, June 10, 2017, we are hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. Proceeds will help the NSTA and PMDF in providing supporting the […]
The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, 2017. The conference will take place at the Long Beach Marriott, 4700 Airport Plaza Drive, Long Beach, California 90815. Registration for the conference is FREE thanks to our sponsors. The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, […]
Dear Friends of the NSTA The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than […]