About NSTA - National Spasmodic Torticollis Association

Volunteers Needed for Research Survey – “Reproductive Factors and Cervical Dystonia”

04 Nov

Dear Friends of the NSTA

The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than 500 controls. The goal is to accumulate information from 1500 people diagnosed with cervical dystonia along with matching numbers of controls to make strong statistical statements. We need your help! If you are diagnosed with cervical dystonia and have not participated, we encourage you to do so.

Please encourage family and friends who understand how important research is to people like you who live with dystonia to participate as controls. The information for participating is provided below.

Cervical Dystonia Volunteers Needed for Research Survey
“Reproductive Factors and Cervical Dystonia”

Researchers at the University of Tennessee Health Science Center are conducting an online research study related to the correlation between various reproductive, hormonal, and environmental factors with cervical dystonia. Your participation will take approximately 30 minutes and will require the completion of an online questionnaire.
To participate:
• You must have been diagnosed with cervical dystonia
• You must be at least 18 years of age
• You must have access to the internet
• You must ask at least two (2) biologically unrelated individuals (such as friends or coworkers)
• of the same gender and approximate age as you to also complete the questionnaire as control subjects

Please access the survey at https://www.surveymonkey.com/s/7KY7FCF
Participation is entirely voluntary. Submissions are anonymous. No identifying information will be requested linking you to the information you provide.

Volunteers Not Diagnosed with Cervical Dystonia Needed

“Reproductive Factors and Cervical Dystonia”

We are conducting an online research study to collect information related to reproductive, hormonal and environmental factors. Your participation will require about 15 minutes and involves completing an anonymous onetime
online survey.

To participate, you must be 18 years of age or older, and
have access to the internet. Please visit https://www.surveymonkey.com/r/GB2Q83L
to complete the survey.

This study is being conducted under the guidance of Dr. Mark LeDoux, Professor of Neurology at UTHSC, and member of the NIH funded Dystonia Coalition. This research project has been reviewed and approved by the UTHSC Institutional Review Board.