Proposed changes to Medicare will limit access to treatment with botulinum neurotoxin for spasmodic torticollis/cervical dystonia. If passed, these changes could be adopted by private insurance carriers, which may affect everyone receiving this treatment. Public comments are accepted until May 16, 2026 The Centers for Medicare & Medicaid Services (CMS) works with regional contractors, known as Medicare Administrative […]
We are proud to welcome Eric Sanders to our Board of Directors
26
Feb
Eric is no stranger to the dystonia community. He is a seasoned neuroscience leader with decades of experience working across cervical dystonia and other neurological conditions. Throughout his career, he has partnered closely with clinicians, researchers, and patient organizations, always with a strong focus on improving outcomes for patients and caregivers. We’re delighted to have […]
Mark Your Calendars for the 2026 MOVE4U 5K Walk/Run Fundraiser – Saturday, April 25, 2026
08
Dec
The MOVE4U 5K Walk/Run will take place at Mile Square Park in Fountain Valley, California on April 25, 2026. Bring your family and friends, spend Saturday morning with us and help us raise funds and raise awareness in the community. Registration fee is $20. Children accompanying you under the age of 16 are free. Your […]
Reinvigorating Your Recovery Through Art Therapy – by Jane Hilton, Freelance Writer
25
Aug
Physical therapy can be trying, even if you remind yourself that each exercise you do is another step towards your recovery. When your body doesn’t want to cooperate with you, it can be easy to grow bored with your prescribed exercises. With only 11.7 million adults attending necessary physical therapy in 2011, it makes sense […]
Webinar with Ken Price – My Unusual and Successful Treatment for my Spasmodic Torticollis (ST)
15
Dec
December 2021 The following is an update of a column I wrote for the Spring 2015 issue of the ST Quarterly on my unusual and successful treatment for my Spasmodic Torticollis (ST). Although I still have muscle spasms in my cervical region, they are generally quite mild and painless, I have free movement and correct […]
In praise of Jean-Pierre Bleton’s approach to the rehabilitation of cervical dystonia and on its complementarity with botulinum toxin injections – by Matthieu, Paris, France
17
Apr
37-year old patient with cervical dystonia Original story published on https://amadys.fr/temoignage/temoignage-de-m-adherent-dystonie-cervicale-se-reeduquer-apprendre-a-bien-vivre-maladie/ Having worked for several years as both a tour guide and a teacher in Paris, while pursuing my PhD in art history, I was diagnosed last year at the age of 36 with cervical dystonia. Receiving this diagnosis – which came, fortunately enough, only […]
2018 Fall ST Quarterly Magazine coming soon!
09
Nov
The 2018 fall issue of the ST Quarterly magazine will be mailed out soon. We have some interesting articles including need-to-know information on what is involved when you participate in a drug study. The following is the article that contains this information that is in the upcoming fall issue. We hope that you find this […]
Dystonia versus Spasticity by Drake D. Duane, MS MD
26
Sep
These two are very different terms in medical language. Both imply muscle “spasm” or involuntary contraction; however, both are caused not by muscle disorders, but by brain or spinal cord disorders. Any of us might experience a muscle spasm as say in a muscle cramp or after any painful injury muscles may tighten up. These […]
Dystonia Advocates’ From Across the Country Convened in Washington, D.C. By Jeff Shair
26
Sep
It was an honor and a privilege that I was asked to represent the NSTA this year for Dystonia Advocacy Day. Representatives from Dystonia Advocacy Network (DAN) assembled in Washington on Capitol Hill for the purpose of bringing awareness to the cause and to lobby for more funds for the disorder. In actuality, it was […]
John Barth and Team BluFrog Train for Triatholon – September 07, 2015
24
Aug
In 2013, NSTA friend and member John Barth successfully completed the Houston Town Lake Triathlon under Team NSTA during Labor Day weekend. Team NSTA’s Fundraising goal was set at $5,000. The team raised $5,900 for our organization surpassing their goal. Coming in 2nd place in the Giving Challenge meant an additional $750 was donated to […]
Another Successful Zent-A-Thon 5k Run/Walk Fundraiser
07
Jul
The Zent-A-Thon 5K Run/Walk was held on Saturday, May 30th at Mile Square Park in Fountain Valley, California. This is the 3nd time the NSTA worked in conjunction with the Parkinson’s and Movement Disorder Foundation (PMDF) to host this event. I am happy to report that the fundraiser was a huge success! By the time […]
Online Research Study on Reproductive Factors and Cervical Dystonia (Uploaded 12.04.14)
01
Oct
University of Tennessee Health Science Center Reproductive Factors and Cervical Dystonia Description of project: We are conducting an online research study related to the correlation between various reproductive, hormonal and environmental factors with cervical dystonia. Your participation will take approximately 30 minutes and will require the completion of an online questionnaire. To participate: • You […]