The Dystonia Coalition (DC) solicits applications for Pilot Projects Program (PPP) and a Career Development Award (CDA) each year. All applications are reviewed by the DC’s Review Boards and during a recent annual meeting, it was suggested that the DC share information with all Patient Advocacy Groups (PAG). This give PAGs the opportunity to co-supporting […]
Webinar with Brian D. Berman, M.D., M.S., F.A.A.N – Beneath the Surface: Non-Motor Symptoms in Cervical Dystonia
14
Mar
Dr. Brian Berman is no stranger to the NSTA. He has supported the NSTA in many ways including presenting on “Neuroimaging in Spasmodic Torticollis” at the 2013 NSTA Symposium in Atlanta, Georgia. On Saturday, March 26th at 10:00 AM Pacific Time, Dr. Berman is our guest speaker for the next NSTA webinar. His topic is […]
Dystonia Advocacy Network Training – March 15th at 4:00 pm ET.
01
Mar
The Dystonia Advocacy Network needs your help in raising awareness of dystonia with elected officials and supporting the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Training is provided and an overview of the issues will be done via a webinar […]
The International Neurotoxin Association (INA) – The TOXINS 2022 6th International Conference
09
Feb
The TOXINS 2022 6th International Conference which will be held July 27-30, 2022, in New Orleans, Louisiana. The TOXINS conferences are the premier venue for consideration of the latest developments in the basic science and clinical applications of neurotoxins. The scientific program―presented by the world’s experts in their respective fields―will be of interest to basic scientists and […]
Webinar with Ken Price – My Unusual and Successful Treatment for my Spasmodic Torticollis (ST)
15
Dec
December 2021 The following is an update of a column I wrote for the Spring 2015 issue of the ST Quarterly on my unusual and successful treatment for my Spasmodic Torticollis (ST). Although I still have muscle spasms in my cervical region, they are generally quite mild and painless, I have free movement and correct […]
An announcement from the Brain Awareness Week Campaign Headquarters
11
Mar
Dear Brain Awareness Week Partners, Brain Awareness Week—March 15-21—is less than two months away, and we’re looking forward to hearing how you plan to celebrate in your community! Partners can now log in to the Brain Awareness Week website to post your event information on the Calendar of Events. With the Covid-19 pandemic continuing to […]
Virtual Advocacy Day Planned for March 3, 2021
10
Feb
We invite you to become a dystonia advocate and help to support research funding, access to treatment and help Members of Congress know what dystonia is and how it changes lives. In 2021, the Dystonia Advocacy Network (DAN) will host a virtual Advocacy Day on March 3rd that will launch our year-long advocacy activities and […]
Support the NSTA this Holiday Season by shopping at smile.amazon.com
29
Oct
Dear Friends of the NSTA, The holiday season is just around the corner and with everyone preparing by shopping early for friends and family, we want to remind you that you can do so and help support the NSTA and other charities by shopping at smile.amazon.com, or to donate items directly from your AmazonSmile Charity […]
2019 NSTA Symposium – Saturday, Nov. 16th and Sunday, Nov. 17th
19
Aug
WANT TO KNOW MORE ABOUT SPASMODIC TORTICOLLIS/CERVICAL DYSTONIA? The NSTA Symposium is Back! It is with a grateful thank you to the generous donations from Diane Truong, the late emeritus board member Bob Farmer, and from our sponsors Allergan Inc., Ipsen, MedTronics and US WorldMeds LLC, that we are proud to host our first symposium […]
In praise of Jean-Pierre Bleton’s approach to the rehabilitation of cervical dystonia and on its complementarity with botulinum toxin injections – by Matthieu, Paris, France
17
Apr
37-year old patient with cervical dystonia Original story published on https://amadys.fr/temoignage/temoignage-de-m-adherent-dystonie-cervicale-se-reeduquer-apprendre-a-bien-vivre-maladie/ Having worked for several years as both a tour guide and a teacher in Paris, while pursuing my PhD in art history, I was diagnosed last year at the age of 36 with cervical dystonia. Receiving this diagnosis – which came, fortunately enough, only […]
Tired of frequent cervical dystonia shots? Consider an alternative
13
Jan
Botulinum toxin is a widely used treatment for cervical dystonia, but many patients find that it wears off before they can get another shot and some have problems with the side effects. Is there a better answer? Think about volunteering for a research study and help to find out. A new investigational study drug, DAXI […]
4th International Congress on Treatment of Dystonia, May 08-11, 2019, Hannover, Germany
26
Nov
The 4th International Congress on Treatment of Dystonia 2019 covers topics such as: Teatment of Dystonia Dystonia Deep brain Stimulation Dystonias are amongst the most common movement disorders. Botulinum toxin and deep brain stimulation have revolutionized their therapy. However, there are still considerable unmet therapeutic needs. This was the reason to organise an International Congress […]