Dear Friends of the NSTA The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than […]

These two are very different terms in medical language. Both imply muscle “spasm” or involuntary contraction; however, both are caused not by muscle disorders, but by brain or spinal cord disorders. Any of us might experience a muscle spasm as say in a muscle cramp or after any painful injury muscles may tighten up. These […]

It was an honor and a privilege that I was asked to represent the NSTA this year for Dystonia Advocacy Day. Representatives from Dystonia Advocacy Network (DAN) assembled in Washington on Capitol Hill for the purpose of bringing awareness to the cause and to lobby for more funds for the disorder. In actuality, it was […]

The NSTA hosts two major fundraisers annually to raise funds and spread awareness of cervical dystonia. One fundraiser is in the form of a 5k Walk/Run called the Zent-A-Thon that is held together with the Parkinson’s and Movement Disorder Foundation (PMDF, www.pmdf.org). The other fundraiser involves NSTA joining a dozen non-profit food booths at the […]

The Fountain Valley Summerfest Committee, in partnership with the City of Fountain Valley, California is launching its 8th annual community celebration called “Fountain Valley Summerfest” to be held June 24, 25, and 26 at the Fountain Valley Sports Park at Brookhurst and Heil. This 4-day celebration will include carnival rides, food and beverage booths, game […]

On Saturday, May 21, 2016, the NSTA is hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. Proceeds will help the National Spasmodic Torticollis Association in providing information and support to people spasmodic torticollis/cervical dystonia. If you are in Orange County, LA County or San Diego County come and participate in […]

The NSTA is cancelling the April 30, 2016, Kentucky/Ohio Regional Conference on Saturday, April 30th. On April 1st, Christian, the son of our Vice President, Diane Truong, lost his battle with depression and passed away. Christian Truong was a gentle and kind person who sincerely cared for others. Since the first day I met him […]

On November 7, 2015, the National Spasmodic Torticollis Association (NSTA) is hosting a one day conference on spasmodic torticollis/cervical dystonia in East Elmhurst, New York. Registration for the conference is FREE thanks to our major sponsor Merz Pharmaceuticals (the makers of Xeomin). Our conference will take place at the Courtyard Marriott LaGuardia Airport. The address […]

In 2013, NSTA friend and member John Barth successfully completed the Houston Town Lake Triathlon under Team NSTA during Labor Day weekend. Team NSTA’s Fundraising goal was set at $5,000. The team raised $5,900 for our organization surpassing their goal. Coming in 2nd place in the Giving Challenge meant an additional $750 was donated to […]

The Zent-A-Thon 5K Run/Walk was held on Saturday, May 30th at Mile Square Park in Fountain Valley, California. This is the 3nd time the NSTA worked in conjunction with the Parkinson’s and Movement Disorder Foundation (PMDF) to host this event. I am happy to report that the fundraiser was a huge success! By the time […]

A Fundraiser for Movement Disorders May 30, 2015 NSTA along with the Parkinson’s and Movement Disorder Foundation (www.pmdf.org) are going to host a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. The event would help raise funds for both organizations while spreading awareness about Parkinson’s & Movement Disorders. Registration is only $20. […]

University of Tennessee Health Science Center Reproductive Factors and Cervical Dystonia Description of project: We are conducting an online research study related to the correlation between various reproductive, hormonal and environmental factors with cervical dystonia. Your participation will take approximately 30 minutes and will require the completion of an online questionnaire. To participate: • You […]