Proposed changes to Medicare will limit access to treatment with botulinum neurotoxin for spasmodic torticollis/cervical dystonia. If passed, these changes could be adopted by private insurance carriers, which may affect everyone receiving this treatment. Public comments are accepted until May 16, 2026 The Centers for Medicare & Medicaid Services (CMS) works with regional contractors, known as Medicare Administrative […]
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MACs (Medicare Administrative Contractors) and Dystonia Treatment with Botulinum Toxins
09
May
What’s a MAC and what do they do? A Medicare Administrative Contractor (MAC) is a private health care insurer that has been awarded a geographic jurisdiction to process Medicare Part A and Part B (A/B) medical claims or Durable Medical Equipment (DME) claims for Medicare Fee-For-Service (FFS) beneficiaries. CMS relies on a network of MACs […]
We are proud to welcome Eric Sanders to our Board of Directors
26
Feb
Eric is no stranger to the dystonia community. He is a seasoned neuroscience leader with decades of experience working across cervical dystonia and other neurological conditions. Throughout his career, he has partnered closely with clinicians, researchers, and patient organizations, always with a strong focus on improving outcomes for patients and caregivers. We’re delighted to have […]
Mark Your Calendars for the 2026 MOVE4U 5K Walk/Run Fundraiser – Saturday, April 25, 2026
08
Dec
The MOVE4U 5K Walk/Run will take place at Mile Square Park in Fountain Valley, California on April 25, 2026. Bring your family and friends, spend Saturday morning with us and help us raise funds and raise awareness in the community. Registration fee is $20. Children accompanying you under the age of 16 are free. Your […]
MOVE4U 5K Walk/Run Fundraiser – Saturday, April 26, 2025
06
May
On Saturday, April 26, 2025, the National Spasmodic Torticollis Association (NSTA) and Parkinson’s and Movement Disorder Foundation (PMDF) partnered up to raise funding by hosting the MOVE4U 5K Walk/Run Fundraiser at Mile Square Park in Fountain Valley, California. The morning started out overcast, and the weather forecast predicted rain. This caused a decent number of […]
Linda Marie Furiate’s Cervical Dystonia Encouragement Group
11
Apr
Linda Marie Furiate’s Cervical Dystonia Encouragement Group Hello to all my Friends with Cervical Dystonia, As we move into the month of May and witness the full renewal of life, it reminds me of my own journey toward wholeness. I love being outdoors this time of year, soaking in the warmth of the Sun and […]
Introducing New NSTA Board Member Jeff Shair
19
Oct
Since the early 2000s’, I have been involved with the NSTA in various endeavors. These include a presenter at symposiums, a writer for the ST Quarterly, an advocate for Dystonia Advocacy Day in Washington DC, and a guest with Ken Price on a local radio show. In addition, I have been an encourager by phone […]
President’s Article – Ken Price
22
Nov
The 2012 NSTA Symposium took place in New Orleans on the weekend of October 20-21 and it was a success! People who arrived early for the symposium enjoyed taking a cruise down the Mississippi river aboard the Steamboat Natchez and roaming the French Quarter. As I have mentioned in my last article, the last time […]
NSTA Symposium – Altanta, Georgia – October 2013
10
Nov
NSTA Atlanta, Georgia Symposium – October 19 – 20, 2013
NSTA Atlanta, Georgia Symposium – October 19 – 20, 2013
20
Oct
The NSTA hosted the 2013 symposium in Atlanta, Georgia on October 19th and 20th and everyone who attended really enjoyed the program. On Friday the NSTA organized a nice outdoor activity for people flying in early. Twenty-five people signed up for the Atlanta Botanical Gardens Tour. We were a little concerned because it had rained […]
Guest Speaker Bio and Presentation
09
Oct
2012 NSTA Symposium Information – October 20 and 21, 2012 I am pleased to announce that we are hosting the 2012 symposium in New Orleans, Louisiana. The symposium will take place on the weekend of October 20 and 21. We have a great line up of guest speakers for this symposium with interesting topics. Vince […]
Houston Town Lake Triathlon
04
Sep
Team NSTA led by John Barth Participate in Houston Town Lake Triathlon and raise $6,650 for NSTA NSTA friend and member John Barth successfully completed the Houston Town Lake Triathlon under Team NSTA during Labor Day weekend. Team NSTA’s Fundraising goal was set at $5,000. They raised $5,900 for our organization surpassing their goal. 2nd […]